Articles
Meet Elena:), with pics and vid, click highlighted lines;).
I think she was on here before, because of her dog which is in the vid
with her too. You gotta see the vid, she is quite spirited:) and funny:D.
http://www.nbc5. com/health/ 17027640/ detail.html? rss=chi&psp= health
YOU DON'T KNOW JACK!:P And that's because you didn't know him until
now!! haha;) Meet him here for the first time:), with pic.
http://www.thisisle icestershire. co.uk/displayNod e.jsp?nodeId= 132384&command= displayContent& sourceNode= 232710&home= yes&more_ nodeId1=132393& contentPK= 21207752
Meet Lin:), no pic.
http://www.taipeiti mes.com/News/ taiwan/archives/ 2008/08/05/ 2003419470
"FOX Files: Revisiting Family With Primoridal Dwarfism," with vid of
their mom discussing a serious health issue called, Moya Moya, which
Primordials can be susceptible.
To see vid click tiny icon picture of their mom.
http://www.myfoxstl .com/myfox/ pages/News/ Detail?contentId =7110716& version=2& locale=EN- US&layoutCode= TSTY&pageId= 3.2.1
"Non-uniform day raise cash for the Dwarf Athletic group (UK),
with pic.
http://www.thestar. co.uk/news/ Nonuniform- day-raises- cash-for. 4326496.jp
Meet Justin Hines, he has Larsen Syndrome and is a singer, has been on
here before. However, CHECK this recent item on him:). I think his
singing and his songs are awesome!:) There is 1 vid of him being
interviewed, and 2 songs to play as well. You may need Adobe's Acrobat
Reader and Player, which is free, to view the vid and hear the songs(?).
http://www.newswire .ca/en/releases/ mmnr/variety2008 /
Article on Justin here, from which I got the above, no pics.
http://www.pr- inside.com/ launches- viral-giving- initiative- utilizing- r724772.htm
The following has definitely been on here before, but this is a new
mention of it. A couple with a Turner's Syndrome daughter start a NEW
Turner Syndrome Foundation, in the USA. Now, it was brought to my
attention that there already is one, but perhaps they are starting a
new one for charitable reasons and/or for reasons of helping Turner
women/children in specific and individual ways(?).
http://www.towntalk news.com/ WebApp/appmanage r/JRC/Weekly;!-1764336015? _nfpb=true& _pageLabel= pg_wk_article& r21.pgpath= %2FTTN%2FNews& r21.content= %2FTTN%2FNews% 2FTopStoryList_ Story_2362251
Meet Hayley:), she has Progeria. She is quit the celeb, known around
the world literally. She was recently nominated as a "Pride of
Britian' hero, one out of many who were nominated for that.
News of it is here:
http://www.mirror. co.uk/news/ top-stories/ 2008/07/31/ nominate- a-pride-of- britain-hero- 115875-20677694/
Hayley's own web page here:
http://hayleyspage. com/index. htm
A British (born) national, Marwan al-Olbaidi, has Morquio Syndrome and
he (briefly) speaks of his limitations living (now) in Qatar, no pic
(of him).
http://www.gulf- times.com/ site/topics/ article.asp? cu_no=2&item_ no=233760& version=1& template_ id=36&parent_ id=16
Malcolm, a Noonan lp, gets his wish granted, with pic.
http://clare. yourguide. com.au/news/ local/news/ general/malcolm- gets-his- wish/1230474. aspx
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Lastly for the parents of lps on here:
Time and time again, I see the Shiner's mentioned online in the news
offering some free clinic to help those with the rarer conditions of
which dwarfism is one, and for free of charge too.
Now this online news article didn't last long as a 'free' view,
but I was still able to get it in its cached form. So you will see it
in that form, and because of that all the pics may or may not show up.
Now, there are NO pics of lps, rather of an (ap) teen they helped:)
and a pic of the Shriners in their miniature Model T cars:P. However,
the pics are not the main reason for my posting this, it's this.
Apparently, and I kid you not, the Shriners as benevolent as they are
and as well known for too, are having a hard time FILLING UP their
hospitals with those they specifically raised funds to help in the
first place. I don't know about you, but health/medical care is very,
very expensive. Thus, this is something the parents may want to save,
pass along and/or even post in their eGroup.
Excerpt: "He wants to spread the word that the Shriners Hospitals
throughout North America are not full.
'We have trouble finding people who will go for the screenings," he
said. "We would like to fill the hospitals. We support these things
and want people to take advantage of them.'"
And, "The hospitals provide care for orthopedic problems of Cerebral
Palsy, Scoliosis, Spina Bifida, brittle bone disease, residuals of
Polio, Juvenile Arthritis, Club Foot, missing limbs and Dwarfism... "
http://cache. search.yahoo. net/search/ cache?ei= UTF-8&p=shriner% 2Bdwarfism& fr=sfp&u= www.timesrepubli can.com/page/ content.detail/ id/508885. html&w=shriner+ dwarfism& d=Tbb2XC72RPQd& icp=1&.intl= us
